|
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National Alliance of Breast Cancer Organizations (NABCO) |
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9 East 37th Street 10th Floor |
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(800) 719-9154 8888062226 |
|
nabcoinfo@aol.com (Email) |
|
NABCO is an alliance of breast cancer concerned organizations. It offers |
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physician referrals, information, job discrimination related advocacy, |
|
professional education, and a speaker's bureau. |
|
National Asian Women's Health Organization (NAWHO) |
|
250 Montgomery Street, Suite 1500 |
|
(415) 989-9747 4157732838 |
|
Improvement of the health status of Asian women and their families through |
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research, education, leadership, and public policy programs. |
|
Through innovative programs and groundbreaking partnerships, NAWHO |
|
has broken the myth of the Asian American “healthy model minority” – |
|
improving breast cancer screening outreach, increasing awareness of |
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diabetes risk, and closing the gaps in immunization coverage. |
|
National Association of Hospital Hospitality Houses, Inc. (NAHHH) |
|
(800) 542-9730 8282531188 |
|
helpinghomes@nahhh.org (Email) |
|
A home that helps and heals is a place where families and patients may |
|
lodge overnight while receiving treatment at a medical facility. It is not for |
|
profit, serves the needs of the patient and the family, and endeavors to |
|
provide community to its guests. |
|
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National Bone Marrow Transplant Link (BMT Link) |
|
20411 W. 12 Mile Rd., Ste 108 |
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(800) 546-5268 2483581886 |
|
myrajacobs@nbmtlink.org (Email) |
|
BMT Link provides information and educational support, referrals, and an |
|
excellent resource guide on bone marrow transplant. |
|
National Brain Tumor Foundation (NBTF) |
|
22 Battery Street Suite 612 |
|
San Francisco CA 94111-5520 |
|
(800) 934-2873 4152840208 |
|
nbtf@braintumor.org (Email) |
|
The NBTF provides information, support, and counseling to brain tumor |
|
patients and their families. They provide a newsletter, a patient-to-patient |
|
telephone support line, a free resource guide, and a list of support groups. |
|
National Breast Cancer Coalition (NBCC) |
|
(202) 296-7477 8006222838 |
|
NBCC is a grassroots effort whose mission is to eradicate breast cancer |
|
through action and advocacy. It focuses on research, creating access to |
|
the best care, treatment, and a clinical trials for all women with breast |
|
cancer, and increasing the influence of breast cancer advocates. |
|
National Cancer Institute - NCI (S) |
|
(301) 496-5583 8004226237 |
|
NCI is the U.S. government agency that supports and conducts research on |
|
cancer. The NCI offers PDQ (physicians data query) -- an up-to-date |
|
computerized listing of cancer information and resources, a toll-free cancer |
|
hotline (1-800-4-CANCER), and information via the web. See also |
|
[http://www.cancer.gov/cancerinfo/pdq/cam] a comprehensive cancer |
|
information database that contains peer-reviewed summaries of the latest |
|
information about the use of CAM (Complementary & Alternative Medicine) |
|
in the treatment of cancer. |
|
National Center for Complementary and Alternative Medicine (NCCAM) |
|
(888) 644-6226 3015193153 |
|
info@nccam.nih.gov (Email) |
|
NCCAM sponsors, conducts research and provides information to the public |
|
on complementary and alternative medicine. They have a toll-free |
|
telephone service, information packets, fact sheets, and newsletters. They |
|
do not provide referrals or advice on specific therapies. Includes NCCAM |
|
National Certification Commission for Acupuncture and Oriental Medicine |
|
11 Canal Center Plaza Suite 300 |
|
Its mission is to establish, assess, and promote recognized standards of |
|
competence and safety in acupuncture and Oriental medicine for the |
|
protection and benefit of the public. |
|
National Children Cancer Society - NCCS (S) |
|
(314) 241-1600 8005326459 |
|
The National Coalition for Cancer Survivorship is the oldest survivor-led |
|
cancer advocacy organization in the country and a highly respected |
|
authentic voice at the federal level, advocating for quality cancer care for all |
|
Americans and empowering cancer survivors. NCCS believes in evidence- |
|
based advocacy for systemic changes at the federal level in how the nation |
|
researches, regulates, finances and delivers quality cancer care. In 2004, |
|
NCCS launched Cancer Advocacy Now (CAN!), a legislative advocacy |
|
network that seeks to involve constituents from across the country in federal |
|
cancer-related issues. Patient education is also a priority for NCCS. We |
|
believe that access to credible and accurate patient information, such as |
|
NCCS’s award-winning Cancer Survival Toolbox® is key to demanding and |
|
receiving quality cancer care. |
|
National Coalition for Cancer Survivorship (S) |
|
Silver Spring MD 20910-5600 |
|
(877) 662-7937 8886509127 |
|
info@canceradvocacy.org (Email) |
|
Network of individuals, organizations, and treatment centers working in the |
|
area of cancer survivorship and support. Its mission is to lead and |
|
strengthen the survivorship movement, to empower cancer survivors and to |
|
advocate for policies that benefit cancer survivor's quality of life. |
|
National Comprehensive Cancer Network |
|
500 Old York Rd., Ste 250 |
|
(888) 909-6226 2156900300 |
|
Dedicated to providing state-of-the-art care to patients, advancing research |
|
on prevention and treatment, and enhancing the effectiveness of cancer |
|
care delivery. Email available on-line. |
|
National Foundation for Cancer Research |
|
4600 East West Highway, Ste 525 |
|
(301) 654-1250 8003212873 |
|
The National Foundation for Cancer Research (NFCR) was founded in |
|
1973 to support cancer research in the laboratory. NFCR research |
|
conducted at both the cellular and molecular levels is leading to better |
|
prevention, earlier diagnosis, new treatments and eventually a cure of |
|
National Hospice & Palliative Care Organization - NHPCO (S) |
|
1700 Diagonal Road, Suite 625 |
|
(703) 837-1500 8006588898 |
|
nhpco_info@nhpco.org (Email) |
|
The National Hospice and Palliative Care Organization (NHPCO) is the |
|
largest nonprofit membership organization representing hospice and |
|
palliative care programs and professionals in the United States. The |
|
organization is committed to improving end of life care and expanding |
|
access to hospice care with the goal of profoundly enhancing quality of life |
|
for people dying in America and their loved ones. |
|
National Human Genome Research Institute - (NHGRI) |
|
National Institute of Health, Building 31 Room 4B09 31 Center Drive, MSC |
|
2152, 9000 Rockville Pike |
|
The National Human Genome Research Institute (NHGRI) leads the |
|
participation of the National Institutes of Health (NIH) in the International |
|
Human Genome Project (HGP). NHGRI directs and supports work on the |
|
sequencing of the human genome; funds research on the genome's |
|
structure, function, and role in health and disease; and supports studies on |
|
the ethical, legal and social implications (ELSI) of genome research. NHGRI |
|
develops the resources and technology to accelerate genome research and |
|
its application to human health, trains investigators, and disseminates |
|
genome information to the public and health professionals. |
|
National Institute of Health (S) |
|
nihinfo@od.nih.gov (Email) |
|
The National Institutes of Health (NIH), a part of the U.S. Department of |
|
Health and Human Services, is the primary Federal agency for conducting |
|
and supporting medical research. |
|
Helping to lead the way toward important medical discoveries that improve |
|
people’s health and save lives, NIH scientists investigate ways to prevent |
|
disease as well as the causes, treatments, and even cures for common and |
|
National Institute of Health Office of Dietary Supplements |
|
6100 Executive Boulevard, Suite 3B01 |
|
The mission of ODS is to strengthen knowledge and understanding of |
|
dietary supplements by evaluating scientific information, stimulating and |
|
supporting research, disseminating research results, and educating the |
|
public to foster an enhanced quality of life and health for the U.S. |
|
The International Bibliographic Information on Dietary Supplements (IBIDS) |
|
database provides access to bibliographic citations and abstracts from |
|
published, international, and scientific literature on dietary supplements. |
|
Users can choose to search the Full IBIDS Database, a subset of Consumer |
|
National Institute of Nursing Research |
|
31 Center Drive, Room 5B-10 |
|
info@ninr.nih.gov (Email) |
|
Supports clinical and basic research to establish a scientific basis for the |
|
care of individuals across the life span-from management of patients during |
|
illness and recovery to the reduction of risks for disease and disability, the |
|
promotion of healthy lifestyles, promoting quality of life in those with chronic |
|
illness, and care for individuals at the end of life. |
|
National Lymphedema Network Inc. |
|
Latham Square 1611 Telegraph Avenue, Suite 1111 |
|
(800) 541-3259 5102083200 |
|
NLN offers a toll-free recorded information line, a quarterly newsletter, bi- |
|
yearly conferences, and referrals to lymphedema treatment centers, health |
|
care providers, and support groups. |
|
National Marrow Donor Program (S+) |
|
3001 Broadway Street Northeast Suite 500 |
|
Minneapolis MN 55413-1753 |
|
(800) 526-7809 8006277692 |
|
NMDP has a registry of bone marrow donors, provides information on how |
|
to become a donor, and organizes recruitment drives for donors. |
|
National Organization for Rare Disorders Inc - NORD (S) |
|
55 Kenosca Ave. , P.O. Box 1968 |
|
(203) 746-6518 8009996673 |
|
RN@rarediseases.org (Email) |
|
NORD is an organizational that offers support and information to people |
|
with are cancers and diseases. They offer a patient networking program, a |
|
database of information on rare diseases, a newsletter, and a medication |
|
Also: 203-744-0100; TDD 203-797-9590 |
|
National Ovarian Cancer Coalition - NOCC |
|
500 NE Spanish River Blvd., Ste 8 Suite 14 |
|
(888) 682-7246 5613930005 |
|
em.nocc@ovarian.org (Email) |
|
Promotes awareness and provides education and referrals for people |
|
affected by ovarian cancer. |
|
National Patient Advocate Foundation |
|
725 15Th St NW 10th Floor |
|
(800) 532-5274 2023478009 |
|
Provides patients and families with current information concerning ongoing |
|
legislative and policy reform. |
|
District Office: Virginia 757-873-0438 |
|
National Patient Air Travel Helpline |
|
(800) 296-1217 7573189145 |
|
mercymedical@arols.com (Email) |
|
Data base of known organizations providing long and short distance air |
|
National Prostate Cancer Coalition |
|
(888) 245-9455 2024639455 |
|
info@fightprostatecancer.org (Email) |
|
Educates the public about prostate cancer, engages in advocacy, and |
|
creates new opportunities for federal and state investments in prostate |
|
National Women's Health Network |
|
514 10th Street NW, Ste 400 |
|
(202) 347-1140 2026287814 |
|
Consumer group dealing with women's rights in health care and cancer. |
|
For health information: 202-628-7814 |
|
A resource for people who cannot afford medicine or other healthcare |
|
costs, NeedyMeds has information on nearly 800 programs. |
|
Neuroblastoma Children Cancer Society |
|
(800) 532-5162 8476051245 |
|
info@neuroblastomacancer.org (Email) |
|
The NCCS is a non-profit organization dedicated to fund-raising, support, |
|
research, and advocacy for children with neuroblastoma and families. |
|
Members of the society are mainly parents or relatives of children |
|
diagnosed with neuroblastoma. |
|
New York Online Access to Health (S) |
|
NOAH provides access to high quality consumer health information in |
|
NOAH is an information guide only and cannot answer personal health- |
|
related or research questions. |
|
OWH funds research and education/outreach on pressing women's health |
|
issues. It's website offers a variety of information on women's health topics. |
|
Oncolink - Abramson Cancer Center (University of Pennsylvania) |
|
3400 Spruce Street - 2 Donner |
|
Philadelphia PA 19104-4283 |
|
This website is a product of the University of Pennsylvania Cancer Center. |
|
It provides information on all types of cancers , updates on cancer |
|
treatments, and news about research advances. The site includes clinical |
|
trial information options and other resources. |
|
Ask the expert email available on-line. |
|
Oncology Nursing Society - ONS (S+) |
|
customer.service@ons.org (Email) |
|
ONS online provides peer-reviewed links, educational events, educational |
|
materials, and textbooks and a legislative action center, internet resource |
|
for cancer treatment symptoms and their management. |
|
FDA/Center for Drug Evaluation and Research |
|
(301) 827-4570 8884636332 |
|
The FDA Oncology Tools web site contains a variety of information related |
|
to cancer and approved cancer drug therapies. |
|
Online and In-print Internet Directories in Medicine |
|
Internet directories in medicine resource for internet listings dealing with |
|
bereavement, patient education and support groups. |
|
On-line Support for Metastatic Breast Cancer Patients |
|
Contains information about metastatic breast cancer and a mailing list you |
|
Ovarian Cancer National Alliance - OCNA |
|
910 17th Street Northwest, Suite 413 |
|
ocna@ovariancancer.org (Email) |
|
Increases public and professional understanding of ovarian cancer and |
|
advocates for better ways to diagnose, treat, and cure this illness. |
|
Ovarian Cancer Research Fund, Inc. |
|
14 Pennsylvania Plaza Suite 1400 |
|
(800) 873-9569 2122681002 |
|
The Ovarian Cancer Research Fund is a non profit organization dedicated |
|
to the formulation of early diagnostic treatment programs and research |
|
toward ultimate conquest of ovarian cancer. |
|
Pancreatic Cancer Action Network - PANCAN |
|
2141 Rosecrans Ave, Ste 7000 PO Box 1010 |
|
(877) 272-6226 3107250025 |
|
National patient advocacy organization for the pancreatic cancer |
|
community. Organization provides public and professional education on |
|
treatments, prevention programs and early detection methods. |
|
partnersagainstpain@pharma.com (Email) |
|
internet resource for current information for patients and professionals on |
|
Partnership for Prescription Assistance - PPA |
|
PPA is a national coalition of America's Pharmaceutical companies, doctors |
|
and other healthcare providers, patient advocacy organizations coming |
|
together to increase awareness of patient assistance programs and to |
|
Patient Advocate Foundation (S) |
|
700 Thimble Shoals Blvd Suite 200 |
|
(800) 532-5274 7578736668 |
|
help@patientadvocate.org (Email) |
|
National nonprofit organization that serves as an active liaison between |
|
patient and their insurance, employer, creditors to resolve matters relative |
|
to their diagnosis. . Organization seeks to safeguard patient through |
|
effective mediation assuring access to care, maintenance of employment |
|
and preservation of financial stability. |
|
The Patient Advocate Foundation is comprised of a network of research |
|
and community oncologists, attorneys, legislators, healthcare industry |
|
representatives, and case managers committed to the goal of offering |
|
support to cancer patients. |
|
Patient-Centered Guides are a mix of medical, practical and emotional |
|
information grounded in western medicine told by people who have been |
|
Pediatric Oncology Resource Center |
|
porcwebmaster@pfeist.net (Email) |
|
Web site created by parent of children with cancer. This site was created by |
|
and for people who know young people who are recovering from cancer. It |
|
provides Web links, and references and information and tidbits of |
|
15 Camp Evans Lane P.O. Box 66149 |
|
Scotts Valley CA 95067-6149 |
|
Peninsula Medical manufactures the ReidSleeve® and other fine products |
|
People Living with Cancer - The American Society of Clinical Oncology |
|
People Living with Cancer website is a reliable, accurate oncologist |
|
approved information about cancer. Cancer specific sections, clinical trial |
|
information, medical dictionary and drug database, discussion groups, |
|
family and friend section, symptom management, coping strategies, |
|
internet resource providing patient information on drugs. |
|
Phrma.org contains the website of the Pharmaceutical Research and |
|
manufactures of America and permits users to download the latest version |
|
Prostate Cancer Foundation |
|
(800) 757-2873 3105704700 |
|
info@prostatecancerfoundation.org (Email) |
|
PCF's mission is to find better treatments and cure for recurrent prostate |
|
The Prostate Cancer Foundation provides support for men with prostate |
|
cancer and their families. They offer a toll-free phone line, patient |
|
advocacy, prostate cancer research funding, a "lending library" of books |
|
and videos, a newsletter, and help with sexual therapy. |
|
Prostate Cancer Research Institute (S) |
|
5777 W. Century Blvd. Suite 800 |
|
(310) 743-2116 3107432110 |
|
A Source for information on Prostate cancer research and an improved |
|
Information regarding prostate cancer and treatment. |
|
PubMed is a service of the National Library of Medicine that includes over |
|
16 million citations from MEDLINE and other life science journals for |
|
biomedical articles back to the 1950's. PubMed includes links to full text |
|
articles and other related resources. |
|
|
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